When Virginia Champoux’s husband received a lung transplant, her social media usage jumped. “Facebook became her daily – often hourly – outlet for sharing the agonizing, surreal, and occasionally funny details of Jay’s struggle to survive,” writes Jonathan Kay in Walrus magazine (June, 2016).
She wrote about her husband’s struggle to live; the psychotic response to his medication; his penchant for ordering odd products online; his fight to digest solid foods. It seems there was nothing she wouldn’t share.
At first glance, Champoux seems to be a poster child for reckless social media. Not so. “I am meticulous in following certain rules. In general, my children are referred to by initials –never their full names. If I post pictures, they are only visible to my friends –never public. And I always ask other parents’ permission if I post a picture of their own children,” said the Montreal native.
More than that, she has carefully made Facebook lists which specify the breadth of her circles. Lists such as “Cancer” (only those who have suffered from it), “work,” “French” (some francophones are offended by her English posts), “close friends,” “B-list,” “D-list,” and the ultra elite “VVIP” list which is limited to the eight most important people in her life.
I was curious about what she shared publically on her Facebook site. So I looked her up (she was the only one listed). Sure enough, there are videos of Jay walking with a tree of IV bags and posts from the day of his death. I felt a bit voyeuristic but I wanted to see if Champoux had changed or deleted any of the posts since being featured in a national magazine. As far as I could tell, they were all there.
Not everyone would be so willing to share the most painful moments of their lives but that’s the point: for some grieving is private matter, for others it’s cathartic.
Privacy means “the right to be left alone.” That right has never been more challenged with the advent of technology and social media where the greatest volume personal thoughts are shared. It’s been a struggle. In 2011, Facebook was accused of deceiving users by leading us to believe that they were protecting our privacy while allowing access to our lives to third-party software developers.
Facebook responded by tightening security to allow as much or as little public access to your posts as you wish. The problem is that most people don’t use the privacy settings that Facebook provides –all the while complaining about loss of privacy.
Social media users have not kept up with the changes. Instead, they worry. According to a poll done in 2015, 64 per cent of Canadians are worried about how corporations treat their personal data. Of that group, only 13 per cent feel they have total control of their information.
Social media corporations respond to complaints because it’s in their best interest, Kay concludes. “The most remarkable aspect of this privacy revolution is that it is being powered primarily not by new laws, but by corporations acting in their own economic self-interest.”